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Usher Syndrome Coalition

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Authority
47 reach 5 · trust 10 · quality 17 · freshness 15
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listed
llms.txt
https://www.usher-syndrome.org/llms.txt
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8
Links
486
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117805 bytes
Popularity rank
#861100
Registered
2008-02-26
Country
United States Hosting inference
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Documentation: developer or product docs worth reading, nothing to call
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2026-10-25T18:05:21.462Z
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The beginning of the file, from our validated copy saved 2026-10-26T04:54:27.536Z. Cached copy · Source on usher-syndrome.org

# Usher Syndrome Coalition

## Pages
- [Home](https://www.usher-syndrome.org/welcome.html): The Usher Syndrome Coalition is the most comprehensive resource for the global Usher syndrome community, bridging the gap between researchers and families.

## About Us
- [About Us](https://www.usher-syndrome.org/about-the-coalition/)
  - [About the Usher Syndrome Coalition](https://www.usher-syndrome.org/about-the-coalition/about.html): The Usher Syndrome Coalition is the core of the global Usher syndrome community, working to connect those living with Usher syndrome to resources, research, and each other.
  - [Contact Us](https://www.usher-syndrome.org/about-the-coalition/contact.html): Looking for support and information on Usher Syndrome? Contact the Usher Syndrome Coalition and be a part of a supportive network for the deafblind.
  - [Mission & History](https://www.usher-syndrome.org/about-the-coalition/mission-history.html): Working to find a cure for the most common genetic cause of combined deafness and blindness.
  - [Staff & Board](https://www.usher-syndrome.org/about-the-coalition/board-staff.html): Staff and Board of Directors: The people that make the Usher Syndrome Coalition tick.
  - [Who We Work With](https://www.usher-syndrome.org/about-the-coalition/who-we-work-with/)
    - [USH Partners](https://www.usher-syndrome.org/about-the-coalition/who-we-work-with/ush-partners.html): USH Partners support the community building efforts of the Usher Syndrome Coalition, ensuring our collective ability to find and support everyone living with Usher syndrome.
    - [Community Collaborators](https://www.usher-syndrome.org/about-the-coalition/who-we-work-with/community-collaborators.html): Community Collaborators enable the Coalition to identify the families of children with Usher syndrome in the United States in order to provide information and support.
  - [Coalition Newsroom](https://www.usher-syndrome.org/about-the-coalition/newsroom/)
    - [Grounded in Science Newsletters](https://www.usher-syndrome.org/about-the-coalition/newsroom/grounded-in-science-newsletters.html): A balance of research news and well-being for the Usher syndrome community.
    - [Coalition in the News](https://www.usher-syndrome.org/about-the-coalition/newsroom/coalition-in-the-news.html): News about the ongoing efforts of the Usher Syndrome Coalition to find a cure for the most common cause of combined deafness and blindness.
  - [Financials](https://www.usher-syndrome.org/about-the-coalition/financials.html)
  - [USH Foresight Awards](https://www.usher-syndrome.org/about-the-coalition/ush-foresight-awards.html): The Foresight Award is presented by the Usher Syndrome Coalition to esteemed honorees for their untiring dedication and commitment to the Usher syndrome community.

## Research
- [Research](https://www.usher-syndrome.org/research/)
  - [Current USH Research](https://www.usher-syndrome.org/research/progress.html): Here you will find research advances for all types of
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