nephcure.org valid

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NephCure: For Rare Kidney Disease

Founded in 2000, NephCure is the only organization focused on rare kidney diseases, empowering patients and driving research, treatments, and care\.

Their llms.txt

The beginning of the file, from our validated copy saved 2026-10-21T00:01:37.574Z. Cached copy · Source on nephcure.org

# NephCure: For Rare Kidney Disease

> Founded in 2000, NephCure is the only organization focused on rare kidney diseases, empowering patients and driving research, treatments, and care\.

Generated by Yoast SEO v26.8, this is an llms.txt file, meant for consumption by LLMs.

## Pages
- [Clinical Trials](https://nephcure.org/managing-rkd/clinical-trials/)
- [Pediatric Care](https://nephcure.org/intro-to-rkd/pediatric-care/)
- [The IgAN Alliance](https://nephcure.org/intro-to-rkd/types-of-rkd/iga-nephropathy-igan/the-igan-alliance/)
- [Navigating IgAN](https://nephcure.org/intro-to-rkd/types-of-rkd/iga-nephropathy-igan/navigating-igan/)
- [Ways to Give](https://nephcure.org/get-involved/ways-to-give/)
- [Managing RKD](https://nephcure.org/managing-rkd/)

## Posts
- [Kidney Disease FAQs](https://nephcure.org/kidney-disease-faqs/)
- [Letter to the NephCure Community: Update on FDA Decision About Sparsentan for FSGS](https://nephcure.org/letter-to-the-nephcure-community-update-on-fda-decision-about-sparsentan-for-fsgs/)
- [Update on FDA Decision About Sparsentan for FSGS \| NephCure Town Hall](https://nephcure.org/update-on-fda-decision-about-sparsentan-for-fsgs-nephcure-town-hall/)
- [NephCure Unveils New Mission Focusing on New Era of Access for Rare Kidney Disease Patients](https://nephcure.org/nephcure-unveils-new-mission-focusing-on-new-era-of-access-for-rare-kidney-disease-patients/)
- [The FDA Grants Accelerated Approval to VOYXACT, a New Treatment Option for Adults with IgA Nephropathy](https://nephcure.org/the-fda-grants-accelerated-approval-to-voyxact-a-new-treatment-option-for-adults-with-iga-nephropathy/)

## Patient Stories
- [Paul B\.](https://nephcure.org/patient-story/paul-b/): Paul Billedo is a 31\-year\-old Filipino\-American who was diagnosed with IGAN in 2018 and it changed his life in many ways\. Although he has to make many changes\.\.\.
- [Judy A\.](https://nephcure.org/patient-story/judy-a/): In 2019, Judy was diagnosed with Stage 3 CKD\. This discovery came after a routine trip to her Primary Care Doctor\. Although Judy had a history of past of symptoms\.\.\.
- [Maria M\.](https://nephcure.org/patient-story/maria-m/): Starting around 2016, Maria was not able to sleep well, not able to lose weight and she would “swell” from time to time; Maria complained about menopause as the culprit\.\.\.
- [Tyler and Jaxon L\.](https://nephcure.org/patient-story/tyler-and-jaxon-l/): Tyler and Jaxon began their journeys at birth but went undiagnosed for their first few years of life\. We noticed swelling around their eyes and bellies but it was always
considered to be related to seasonal allergies\.\.\.
- [Macy H\.](https://nephcure.org/patient-story/macy-h/): Macy Helm was diagnosed at the age of three with Nephrotic Syndrome in 2009, when she presented with swollen eyelids\.\.\.

## Researchers
- [Sethu Madhavan , MD](https://nephcure.org/researcher/sethu-madhavan/)
- [Dorin\-Bogdan Borza, Ph\.D\.](https://nephcure.org/researcher/dorin-bog
…

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