# CURE Epilepsy: Promoting and funding patient\-focused research\.

> CURE Epilepsy is the leading nonprofit epilepsy research organization investing in unmet research needs that will lead to a cure\.

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## Pages
- [Homepage](https://www.cureepilepsy.org/)
- [Annual Chicago Benefit](https://www.cureepilepsy.org/annual-benefit/)
- [SUDEP Action Day](https://www.cureepilepsy.org/get-involved/awareness-days/sudep-action-day/)
- [Ways to Give](https://www.cureepilepsy.org/support-us/ways-to-give/)
- [Team CURE Epilepsy](https://www.cureepilepsy.org/get-involved/cure-epilepsy-champions/team-cure-epilepsy-2/)

## Venues
- [Bend, Oregon](https://www.cureepilepsy.org/venue/bend-oregon/)
- [Bend's Old Mill District West Parking Area](https://www.cureepilepsy.org/venue/bends-old-mill-district-west-parking-area-2/)
- [Casco, ME](https://www.cureepilepsy.org/venue/casco-me/)
- [Charlottesville, VA](https://www.cureepilepsy.org/venue/charlottesville-va/)
- [Sapphire Point Amenity Center](https://www.cureepilepsy.org/venue/sapphire-point-amenity-center/)

## Organizers
- [SeizureActionPlan\.org](https://www.cureepilepsy.org/organizer/seizureactionplan-org-2/)
- [Joanna Sophia Foundation](https://www.cureepilepsy.org/organizer/joanna-sophia-foundation/)
- [Push10](https://www.cureepilepsy.org/organizer/push10/)
- [SeizureActionPlan\.org](https://www.cureepilepsy.org/organizer/seizureactionplan-org/)

## Events
- [Uncorking For a Cause 2026](https://www.cureepilepsy.org/event/uncorking-for-a-cause-2026/): Vin Chicago is hosting their fourth annual "Uncorking For a Cause" non\-profit benefit weekend November 6th to 8th\!
- [Tokyo Marathon 2027](https://www.cureepilepsy.org/event/tokyo-marathon-2027-2/): CURE Epilepsy is an official international charity of Tokyo Marathon 2027\. Step up to the challenge to raise funds for epilepsy research\.
- [AES 2026 CURE Epilepsy Reception](https://www.cureepilepsy.org/event/aes-2026-cure-epilepsy-reception/): Join us for a celebration of the epilepsy research community at CURE Epilepsy's annual AES reception\.
- [5th Annual Reagan’s Run](https://www.cureepilepsy.org/event/5th-annual-reagans-run/): Reagan and her family are on their way to passing the $100,000 fundraising mile marker this year\!
- [40 for the 40th](https://www.cureepilepsy.org/event/40-for-the-40th/): Megan Cullen is hosting a nationwide 40\-minute run or walk to celebrate her 40th birthday, and help her raise money for a cause that is near and dear to her heart\. 

## Podcast Series
- [Former NINDS Director Dr\. Walter Koroshetz on Current Challenges and Promise in Epilepsy Research](https://www.cureepilepsy.org/seizing-life/former-ninds-director-dr-walter-koroshetz-on-current-challenges-and-promise-in-epilepsy-research/): Former NINDS Director Dr\. Walter Koroshetz discusses the state of epilepsy research, the critical role of federal funding, and the advances bringing new hope to people and families impacted by epilepsy\.
- [Epilepsy, Identity, and AI: Processing the Impacts of an Adult Onset Diagnosis](https://www.cureepilepsy.org/seizing-life/epilepsy-identity-and-ai-processing-the-impacts-of-an-adult-onset-diagnosis/): Katie Czyz talks about being diagnosed with adult\-onset epilepsy at age 39 after more than a decade of symptoms and how she utilized AI as one tool to help her process the impacts of her diagnosis\.
- [Nicole Teeny on Epilepsy, Endurance, and Running with Horses](https://www.cureepilepsy.org/seizing-life/nicole-teeny-on-epilepsy-endurance-and-running-with-horses/): Writer, filmmaker, and podcast creator Nicole Teeny shares her journey with adult\-onset epilepsy and the deeply personal story behind her ESPN 30 for 30 audio documentary, GIRL v\. HORSE\. 
- [One Family’s SUDEP story: A Tragic Loss Drives SUDEP Advocacy and Fundraising](https://www.cureepilepsy.org/seizing-life/one-familys-sudep-story-a-tragic-loss-drives-sudep-advocacy-and-fundraising/): In observance of Sudden Unexpected Death in Epilepsy \(SUDEP\) Action Day on October 16th, we speak with the Maffie family about the tragic loss of Anthony Maffie to SUDEP and their advocacy and fundraising efforts in Anthony’s honor\.
- [Epilepsy and Medical Trauma: Recognizing, Accepting, and Healing](https://www.cureepilepsy.org/seizing-life/epilepsy-and-medical-trauma-recognizing-accepting-and-healing/): Neuropsychologist Dr\. James Jackson discusses the concept of medical trauma and the often\-overlooked emotional toll of living with epilepsy on individuals and families\.

## Personal Stories
- [Anya Hill's Story](https://www.cureepilepsy.org/personal-stories/anya-hills-story/): I am 18 years epilepsy\-free and counting, but my journey continues\.
- [Muhammad's Story](https://www.cureepilepsy.org/personal-stories/muhammads-story/): Epilepsy has a way of taking a moment that should be ordinary, a nap, a car ride, a bath, and making it something you have to think about\.
- [Brittani Dozier's Story](https://www.cureepilepsy.org/personal-stories/brittani-doziers-story/): I'm 28 and don't even know if I can have a life or when mine will just be safe and happy\.
- [Price E's Story](https://www.cureepilepsy.org/personal-stories/prices-story/): He has the sweetest little spirit and is such a fighter\. No baby or child should ever have to know a life filled with this stuff\.
- [Jesse W's Story](https://www.cureepilepsy.org/personal-stories/jesse-ws-story/): My name is Jesse and I am a 28\-year\-old man with epilepsy from Long Island, New York\.

## Research News
- [Introducing the 2026 Taking Flight Awardees](https://www.cureepilepsy.org/news/introducing-the-2026-taking-flight-awardees/): These three early\-career investigators will use their Taking Flight grants to establish their research and springboard to the next stage of their careers\.
- [Announcing New CURE Epilepsy Grant for Global SUDEP Collaboration](https://www.cureepilepsy.org/news/announcing-new-cure-epilepsy-grant-for-global-sudep-collaboration/): The goal of the collaboration, which brings new researchers and disciplines into the epilepsy field, is to more effectively identify those who are at high risk of SUDEP and ultimately prevent this tragedy\.
- [A Night of Discovery, Connection, and Hope](https://www.cureepilepsy.org/news/a-night-of-discovery-connection-and-hope/): This year’s Night of Discovery reminded us that progress is built by sustaining research, rewarding curiosity, and passing down knowledge\.
- [Intermittent Fasting with MCTs Shows a Potential Signal for Fewer Seizures in Drug\-Resistant Epilepsy](https://www.cureepilepsy.org/news/intermittent-fasting-with-mcts-shows-a-potential-signal-for-fewer-seizures-in-drug-resistant-epilepsy/): Researchers are exploring whether less restrictive approaches could provide some of the same benefits\.
- [Restrictions on Some Anti\-Seizure Medications May Create Barriers to Epilepsy Care](https://www.cureepilepsy.org/news/restrictions-on-some-anti-seizure-medications-may-create-barriers-to-epilepsy-care/): Nearly all respondents—99%—reported having patients whose medication refills were delayed because of controlled\-substance restrictions\.

## Epilepsy Explained
- [Epilepsy Surgery Part 2](https://www.cureepilepsy.org/epilepsy-explained/how-to-prepare-for-epilepsy-surgery/): This is part 2 of Epilepsy Surgery Explained\. Dr\. Scott Perry answers questions about preparing for epilepsy brain surgery and addresses post\-operation concerns\. This is part of out Treatments and Therapies video series\.
- [Genetic Testing Explained](https://www.cureepilepsy.org/epilepsy-explained/genetic-testing-explained/): Dr\. Elizabeth Gerard, MD, answers your questions about genetic testing for epilepsy\.
- [Epileptologist Visits Explained](https://www.cureepilepsy.org/epilepsy-explained/epileptologist-visits-explained/): Dr\. Douglas Nordli, Pediatric Epileptologist at the University of Chicago Medicine, offers advice and insights on how to prepare for your epileptologist or neurologist appointments in order to get the most out of the time with your healthcare provider\.
- [Catamenial Epilepsy Explained](https://www.cureepilepsy.org/epilepsy-explained/catamenial-epilepsy-explained/): Dr\. Alexa King explains what every woman who experiences seizures needs to know about catamenial epilepsy\.
- [Seizure Phases Explained](https://www.cureepilepsy.org/epilepsy-explained/seizure-phases-explained/): Dr\. Kristen Park explains what happens before, during, and after a seizure in Seizure Phases Explained\.

## Team Bios
- [Alice Lam, MD, PhD](https://www.cureepilepsy.org/about-cure-epilepsy/our-team/alice-lam-md-phd/): Alice Lam, MD, PhD, Harvard Medical School and The Massachusetts General Hospital 
- [Dana Vielmetti, MBA](https://www.cureepilepsy.org/about-cure-epilepsy/our-team/dana-vielmetti/): Dana Vielmetti, MBA, Senior Director, Marketing and Communications
- [Tonya Therrien](https://www.cureepilepsy.org/about-cure-epilepsy/our-team/tonya-therrien/): Tonya Therrien, Director, Events and Partnerships
- [Rimi Abiodun\-Oni](https://www.cureepilepsy.org/about-cure-epilepsy/our-team/rimi-abiodun-oni/): Rimi Abiodun\-Oni, Coordinator, Events
- [Dr\. Elaine O’Loughlin](https://www.cureepilepsy.org/about-cure-epilepsy/our-team/dr-elaine-oloughlin/): Dr\. Elaine O'Loughlin, Associate Director, Research Initiatives

## Discoveries
- [New Cause of Severe Childhood Epilepsy Found – Genetic Mutation in the CUX2 Gene](https://www.cureepilepsy.org/research-discoveries/new-cause-of-severe-childhood-epilepsy-found-genetic-mutation-in-the-cux2-gene/): These genetic mutations are very rare and therefore collaborative efforts with multiple patient populations make it more likely that a rare genetic mutation can be identified and studied\.
- [Harmonizing Epilepsy Research: Common Data Elements](https://www.cureepilepsy.org/research-discoveries/harmonizing-epilepsy-research-common-data-elements/): CDEs provide universal “sheet music” for epilepsy research, providing a standardized way of describing and collecting data\.
- [Transplanting Inhibitory Neurons Can Reduce Seizures](https://www.cureepilepsy.org/research-discoveries/transplanting-inhibitory-neurons-can-reduce-seizures/): An advantage of regenerative medicine is that the transplanted cells can potentially replace lost or damaged inhibitory neurons and also integrate into the existing brain circuitry\.
- [Serendipity in Science: New Uses for Old Drugs](https://www.cureepilepsy.org/research-discoveries/serendipity-in-science-new-uses-for-old-drugs/): Drug repurposing fast\-tracks treatments for epilepsy
- [Sorting Out SUDEP: Seeking The Causes, Finding Those At Risk](https://www.cureepilepsy.org/research-discoveries/sorting-out-sudep-seeking-the-causes-finding-those-at-risk/): To really move the needle on SUDEP research, we need to bridge two key topics: advancing our understanding of SUDEP risk through existing data and leveraging that knowledge to develop tools that help individuals and healthcare providers better understand and communicate risk\.

## Webinars
- [Pipeline of Progress: Therapeutic Devices on the Horizon](https://www.cureepilepsy.org/webinars/pipeline-of-progress-therapeutic-devices-on-the-horizon/): This webinar explores new therapeutic devices, including transcranial electrical stimulation, transcranial magnetic stimulation, and focused ultrasound\.
- [Pipeline of Progress: Epilepsy Medications on the Horizon](https://www.cureepilepsy.org/webinars/pipeline-of-progress-epilepsy-medications-on-the-horizon/): Dr\. Nathan Fountain reviews some of the epilepsy medications in phase III clinical trial as of April 2026\.
- [Epilepsy Service Dogs: The Science Behind the Sniff](https://www.cureepilepsy.org/webinars/epilepsy-service-dogs-the-science-behind-the-sniff/): Review of the two types of epilepsy service dogs \(seizure alert dogs and seizure rescue dogs\), why they can help people with epilepsy, and the process of getting one\.
- [Women’s Health: Complex Interactions of Epilepsy, Medications, and Hormones](https://www.cureepilepsy.org/webinars/womens-health-complex-interactions-of-epilepsy-medications-and-hormones/): How can epilepsy and anti\-seizure medications affect hormones and reproductive health? How do sex steroid hormones affect anti\-seizure medications and seizure control? Can the menopausal transition affect epilepsy? Get the answers to this and more\.
- [Epilepsy Emergencies and Current Rescue Medications](https://www.cureepilepsy.org/webinars/epilepsy-emergencies-and-current-rescue-medications/): When a seizure becomes an emergency, rescue medications provide immediate relief and help prevent the need for emergency care\.

## Treatment Talks
- [Working With Your Doctor On Epilepsy Medication Access](https://www.cureepilepsy.org/treatment-talks/working_with_your_doctor_on_epilepsy_medication_access/): Working with your doctor to access new epilepsy drugs or switch to different anti\-seizure medications\.
- [Seizure Emergencies: Delivery Methods and Treatment Options](https://www.cureepilepsy.org/treatment-talks/seizure-emergencies-delivery-methods-and-treatment-options/): Seizure emergencies and the different delivery methods and treatment options for the current rescue medications\.
- [Diagnosis, Treatment, and Prognosis of Childhood Absence Epilepsy](https://www.cureepilepsy.org/treatment-talks/diagnosis-treatment-and-prognosis-of-childhood-absence-epilepsy/): This Treatment Talk will discuss the diagnosis, treatment, and prognosis of childhood absence epilepsy\.
- [Treatment of Focal Epilepsy: Advancement Toward Medical Remission](https://www.cureepilepsy.org/treatment-talks/treatment-of-focal-epilepsy-advancement-toward-medical-remission/): This Treatment Talk discusses focal epilepsy and the most recent treatments to help patients achieve medical remission\. 
- [Fenfluramine \- Treatment for Lennox\-Gastaut Syndrome \(LGS\)](https://www.cureepilepsy.org/treatment-talks/fenfluramine/): This Treatment Talk will focus on Lennox\-Gastaut Syndrome \(LGS\), a severe form of childhood epilepsy that arises during infancy or early childhood, and the use of the drug fenfluramine to treat patients diagnosed with LGS\.

## Grants Awarded
- [Development of ECG\-Derived Respiratory Biomarkers for SUDEP Risk Assessment](https://www.cureepilepsy.org/grant_type/development-of-ecg-derived-respiratory-biomarkers-for-sudep-risk-assessment/): Dr\. Ryan and his team will study breathing changes before, during, and between seizures in many more patients than was previously possible\.
- [Targeting GFAP Aggregation to Prevent Post\-Traumatic Epileptogenesis](https://www.cureepilepsy.org/grant_type/targeting-gfap-aggregation-to-prevent-post-traumatic-epileptogenesis/): This project will test whether a treatment that lowers GFAP levels can reduce these harmful changes and help prevent epilepsy from developing or make it less severe\.
- [Network Resonance as a Novel, Targetable Driver of Seizure Onset in Drug\-Resistant Epilepsy](https://www.cureepilepsy.org/grant_type/network-resonance-as-a-novel-targetable-driver-of-seizure-onset-in-drug-resistant-epilepsy/): By uncovering how the brain responds to different levels of stimulation, this research could help make neurostimulation more personalized, leading to better seizure control and reducing the need for trial\-and\-error treatment approaches\.
- [Identifying Clinical Biomarkers and Developing Multimodal Risk Prediction Tools for SUDEP Prevention](https://www.cureepilepsy.org/grant_type/identifying-clinical-biomarkers-and-developing-multimodal-risk-prediction-tools-for-sudep-prevention/): By analyzing patterns in heart rhythm, breathing, brain activity, arousal, and sleep, this project aims to uncover measurable warning signs of risk to inform prevention strategies\.
- [Understanding the Cardiac Basis of SUDEP in Alternating Hemiplegia of Childhood](https://www.cureepilepsy.org/grant_type/understanding-the-cardiac-basis-of-sudep-in-alternating-hemiplegia-of-childhood/): This project will identify which children are at highest risk and which medications are safest, with the goal of preventing sudden death and providing families and guiding clinical care of patients\.

## Medications
- [Diazepam](https://www.cureepilepsy.org/understanding-epilepsy/treatments/epilepsy-medications/diazepam/)
- [Midazolam](https://www.cureepilepsy.org/understanding-epilepsy/treatments/epilepsy-medications/midazolam/)
- [Lorazepam](https://www.cureepilepsy.org/understanding-epilepsy/treatments/epilepsy-medications/lorazepam/)
- [Vigabatrin](https://www.cureepilepsy.org/understanding-epilepsy/treatments/epilepsy-medications/vigabatrin/)
- [Cannabidiol](https://www.cureepilepsy.org/understanding-epilepsy/treatments/epilepsy-medications/cannabidiol/)

## Event Categories
- [Awareness Events](https://www.cureepilepsy.org/events/category/awareness-events/)
- [CURE Epilepsy Champion Events](https://www.cureepilepsy.org/events/category/cure-epilepsy-champion-events/)
- [Team CURE Epilepsy Events](https://www.cureepilepsy.org/events/category/team-cure-epilepsy-events/)
- [Run/Walk Series](https://www.cureepilepsy.org/events/category/run-walk-series/)
- [Online Events](https://www.cureepilepsy.org/events/category/online-events/)

## Topic
- [Pediatric Epilepsy](https://www.cureepilepsy.org/topic/pediatric-epilepsy/)
- [Genetics](https://www.cureepilepsy.org/topic/genetics/)
- [SUDEP](https://www.cureepilepsy.org/topic/sudep/)
- [Mechanisms](https://www.cureepilepsy.org/topic/mechanisms/)
- [Treatment](https://www.cureepilepsy.org/topic/treatment/)

## Story Topics
- [Adult with Epilepsy](https://www.cureepilepsy.org/story_topics/adult-with-epilepsy/)
- [Child with Epilepsy](https://www.cureepilepsy.org/story_topics/child-with-epilepsy/)
- [Rare Epilepsies](https://www.cureepilepsy.org/story_topics/rare-epilepsies/)
- [Surgery](https://www.cureepilepsy.org/story_topics/surgery/)
- [SUDEP](https://www.cureepilepsy.org/story_topics/sudep/)

## Podcast Topics
- [Living With Epilepsy](https://www.cureepilepsy.org/podcast_topics/living-with-epilepsy/)
- [Research](https://www.cureepilepsy.org/podcast_topics/research/)
- [Parent/Caregiver](https://www.cureepilepsy.org/podcast_topics/parent-caregiver/)
- [Child](https://www.cureepilepsy.org/podcast_topics/child/)
- [Adult](https://www.cureepilepsy.org/podcast_topics/adult/)

## Optional
- [Sitemap index](https://www.cureepilepsy.org/sitemap_index.xml)